Josephine’'’s Story
Although so young, Josephine saw the need to create a magical outdoor escape where pediatric patients wouldn't need special permission to visit with their family members or caregivers. Soon Josephine had her eye on a rooftop space at the Children's Hospital that could be transformed into her dream garden. Josephine worked on the plans with her mother, Heidi. Heidi and Josephine's vision was for all pediatric patients to be able to go outside into this magical garden. Their plans included space to play, beautiful flowers to examine, inspirational artwork, and places for families to be together.
The garden would be an interactive space with all the elements of nature and would house a climbing boulder, wishing fountain, a hand-hewn warrior pole, chalkboard walls, and a custom whimsical awning to provide shelter from the sun and rain, as well as a space to create art. They wanted it to be a place that would bring joy to so many and provide a place of respite for patients just like Josephine. In the words of Josephine's mother, Heidi, it would be "a place to blow bubbles, feel the elements, and dream."
And so, in tribute to a little girl with a dream and a heart as big as all outdoors, Josephine's Garden was born.
On September 19, 2010, Josephine was diagnosed with a rare, malignant, high-grade brain tumor called atypical teratoid rhabdoid tumor (AT/RT). AT/RT is a rare tumor type that accounts for less than 5% of all pediatric central nervous system tumors.
Unfortunately, after a year-long battle that included numerous surgeries, 5 rounds of high-dose chemotherapy, 2 auto-stem cell transplants, and 6 weeks of daily spinal and cranial radiation, Josephine lost her fight on October 23, 2011. Throughout it all, enduring treatment for more than 250 inpatient days at the Joseph M. Sanzari Children's Hospital, she never once lost her fighting spirit and on that day in October 2011, Josephine earned her angel wings.
During her treatment which required extended hospitalizations, Josephine's environment was restricted by the hospital’s walls. She longed to be outdoors, enjoying the sunshine and just being a little girl. Josephine wanted a place where she and other pediatric patients could interact with nature - see the flowers abloom, feel the fresh air and see the sun shine, and most of all, just be children. Unfortunately, the only way for any pediatric patient to spend time outside at the Joseph M. Sanzari Children's Hospital was to obtain clearance from their healthcare team to leave their specific pediatric unit and visit a garden that was created for adult patients in another area of the Medical Center.
